Category Archives: Illness

How I’ll Protest the AHCA

It’s all been said already.  The GOP bill, TrumpDoesn’tCare, sucks.  And frankly, I am unable to find the funny in the fact that the current leaders just sold us down the River Styx, on our way to hell.

I feel it personally, deeply.  I honestly fear for the future of myself and everybody like me with a preexisting condition.  Everybody with a chronic condition that requires expensive medicine.  Mine costs $26K every six weeks.  Over the 5 years of the “pool” the GOP added to the AHCA, I’ll use $1 million just by myself.  Because of poop problems.

Folks keep telling me that I’m over-reacting, that this bill will never pass the Senate.  And that’s true.  But I have no faith that the Senate version will be much better, only different.  After all, it is run by the folks who literally stole a supreme court seat.  Does anybody really believe that these guys will do the right thing?

So clearly there is only one response that I have to Donald Trump and the House GOP.

If you hear about somebody doing this at the White House or on Capitol Hill, just pretend you don’t know me.

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I Can Change The World!

It will come as no surprise that I would personally love to save the world.  But like most folks, well, I just couldn’t figure out how.

 

When the Women’s March happened, my hopes dwindled.  How could I save the world and still be within reach of the bathroom?  Ditto all the other spontaneous and planned demonstrations that have taken place since January 21.

But then I learned that Yes. I. Can!  Really!  I can save the world from climate change single-handedly.  Really!  Me!

You can’t though.  Sorry.

You see, I just read this article that says that the city of Portland, Oregon has come up with a terrific way to produce electricity through poop.  And pee.

I can do that.  In fact, I often can’t NOT do that.

It’s true!  They installed toilet turbines to generate power with every flush.

I volunteer to power the East Coast.  Except for the White House and Mara Laga.  Because I don’t give a shit about Trump.

 

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Two Mints in One

Remember those Certs’ Ads from the 60s?  {Shut up if you don’t, please.  I’m not talking to you, you whippersnapper.]

Well this morning I had a “two in one” moment, and I nearly drove off the road because the story I heard on the radio hit my two* hot buttons.

Did you hear this one?

Louie Gohmert, (Braintrust-TX (of course) announced that he wasn’t going to do any in-person Town Hall meetings with his constituents because, and I quote:

The House Sergeant at Arms advised us after former Congresswoman Gabby Giffords was shot at a public appearance, that civilian attendees at Congressional public events stand the most chance of being harmed or killed — just as happened there.

Now to clarify in case you’ve been self treating your PESD heavily and are starting to look like Steve Bannon, this really pisses me off.

Because Louie, Louie has an A rating from the NRA, and just two weeks ago on February 2, Louie, Louie voted to allow mentally ill folks to get guns, and he believes that MORE guns will prevent mass shootings.

Talk about the personification of the politician who thinks it’s OK for US to get shot wherever we go, but makes sure that his place of employment is a veritable Fort Knox of security.

Later today, Gabby Giffords, who has been working since her shooting for sensible gun laws, called Louie, Louie out on his hypocrisy:

“I was shot on a Saturday morning. By Monday morning, my offices were open to the public,” Giffords said. “Ron Barber ― at my side that Saturday, who was shot multiple times, then elected to Congress in my stead ― held town halls. It’s what the people deserve in a representative.”

“To the politicians who have abandoned their civic obligations, I say this: Have some courage,” Giffords said. “Face your constituents. Hold town halls.”

Gohmert, put on some kevlar and get your ass in front of the public.

My own member of congress, Barbara Comstock, you too.  Telephonic Town Halls don’t cut the mustard.  I want you to look into my eyes before you rip away my healthcare/medicare/civil rights.

Oh, and in 2018, can we please get rid of these GOP members of Congress who are too stupid to even know how stupid they are?

* OK, so I have more than two** hot buttons.

** OK, so I have more than two hundred hot buttons.

*** Did I forget a footnote?

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The Difference and Hillary’s Chicken

As if we needed reminders.  As if you couldn’t imagine this sort of thing happen.  In case you need to show the difference in the two parties.

Show ’em this.

J.J. Holmes has severe cerebral palsy.  He is 12 and is confined to a wheel chair.

On Saturday, his mother took him to a Trump rally, where he wanted to protest Trump’s treatment of folks with disabilities.  So they raised a Hillary placard.  And they were thrown out.

According to one report I read:

This is truly disturbing to me … What I witnessed while covering a Trump rally today. Wheelchair-bound JJ Holmes, 12, who has cerebral palsy, and his family were ordered out of Saturday’s Trump rally by Trump after they chanted for Hillary Clinton. JJ begged his mom, Alison, to travel over two hours so he could attend. JJ begged his mom, Alison, to travel over two hours so he could attend. Unable to speak, JJ communicates through a special device similar to Stephen Hawkings. JJ is passionate about politics and concerned about the future of all humans but especially those with disabilites. Alison said the family was kicked by Trump supporters and had to shield JJ’s wheelchair as Trump supporters gathered to push JJ’s wheelchair out of their space. Alison was called a child abuser and a murderer. This is just so, so sad! Tears are burning my eyeballs but then I look at JJ smiling afterwards when he asked his mom if she is proud of him.

Trump himself ordered the boy and his mother to be thrown out of the rally. His deplorable supporters taunted them on the way out. Taunting a disabled child? The lowest of the low.

That’s not exactly how the Democrats acted.

Instead, J.J. and his family got to meet President Obama.

Attribution: Valentina Pereda on Facebook (via Daily kos)

Attribution: Valentina Pereda on Facebook (via Daily kos)

Since Hillary started her advocacy working to get disabled students admitted to school, I’m pretty sure s he’s good with Obama supporting her on this one.

Trump’s supporters were kicking at JJ’s wheelchair.  What sort of people do that?

Oh yeah.  Deplorable ones.

*****

Don’t be confused by the second half of my title.  I don’t think that Hillary IS chicken.  Nope, not a bit.

But she DOES makes a fine chicken dish that made it into the 1987 Congressional Club Cookbook, which has recipes from all sorts of congress members, their spouses, governors and their spouses.  Both Bill and Hillary have recipes in it, befitting the first power couple — both cook.

I Took This Picture! It's MY Cookbook!

I Took This Picture! It’s MY Cookbook!

It's my snapshot of the page.

That’s my proof.    And my picture.

It’s quick, easy and perfect for a weeknight meal.

This time, I may have it with champagne.

 

*****

I’m really looking forward to writing about non-campaign related shit!

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Nurses — The Beauty of Seamless Teamwork

Naturally, I was just settling down in my recliner for a nap when the commotion started.

Yesterday I had my Remicade infusion in the outpatient infusion center at the hospital.  I was in one of my favorite spots — near the nurses station and the bathroom.  The room is a bay of about 15 vinyl recliners designed for easy cleaning.  Unfortunately, once the leg rests are up, getting out is nearly impossible.  That’s why I like being by both the nurses’ station and the bathroom.  No need for a change of clothes.

Anyway, as I was settling down for my nap with my curtain partially drawn when another patient walked towards me from the other end of the corridor.  As she neared the nurses’ station, she looked up at the ceiling, and I saw her legs buckle, her arms flap out birdlike, and in slow motion she started to faint.

Luckily for Mrs. Smith, a nurse was there to catch her.  That nurse, Brittany, called out for help, and I then witnessed one of the most professional exhibitions of teamwork I’ve ever seen.

Google Image

                          Google Image

Immediately, Molly, my nurse ran to help, calling out, calmly for assistance, and specifying the location.  Brittany and Molly gently lowered Mrs. Smith to the floor, with Molly saying “Mrs. Smith, open your eyes,” repeatedly

Other nurses went different directions towards strategically located equipment which was quickly and efficiently brought to the aid of Mrs. Smith.

Within 1 minute, Mrs. Smith had 6 nurses as well as equipment protecting her privacy surrounding her.  Each nurse had a role.  Molly got Mrs. Smith to open her eyes, then to squeeze her hand, then to speak.  Another nurse contacted the ER to send EMTs with a gurney to get Mrs. Smith to the ER.  Another started her on a fluid IV while still another nurse took an EKG and yet another set up and constantly monitored vital signs, calling them out to the team.

Within 4 minutes, Mrs. Smith, awake and groggy, was wheeled out to the ER with Brittany, the nurse who originally caught her fall, holding her hand and walking with her.

*****

I can honestly say as an expert patient, that being sick sucks.  Often we grouse at our doctors and nurses and other caretakers.  We bitch about the hospitals, the costs, everything.  Because we don’t want to need these services.

But, like Mrs. Smith (not her real name), I’ve been in need of help before.  And when it’s you on the receiving end, it’s hard to appreciate the artistry.

I saw a the most amazing demonstration well-trained staff of caring professionals.  I have a lot of faith in my healthcare professionals, but it was fascinating and wonderful watching when I’m not on the receiving end.

 

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Shout About The Clinton Foundation From the Rooftops!

From 1999 to 2002, I was saving the world.

That’s how I described my job at the World Health Organization, anyway.  And while it was modestly said tongue in cheek, I honestly did/do feel like that’s exactly what I was doing.  Saving the World.  And it made me proud.  I’m still proud, even though most of what I did was email folks who were actually saving the world.

In the early 2000s, Africa was a public health nightmare .  HIV/AIDs was spreading and with it the ancient scourge of Tuberculosis, which was hoped to be contained and ultimately was instead increasing.  That’s because about 40% of HIV patients have latent TB, which develops into full blown TB, a highly contagious airborne infection.  One that since my day has become more drug resistant.

Drugs for HIV — anti-retrovirals, were expensive.  Prohibitively so for the people who needed them most.  The infrastructure for getting the drugs where they were most needed often didn’t exist.  People were dying.  Lots of people were dying because of disease and the inability to get and/or afford medicine.

I left WHO just as the Clinton Foundation started saving that part of the world.

The Clinton Foundation’s Clinton Health Access Initiative (CHAI) worked with existing groups including the WHO and the U.N.  But it brought clout to a field that was mired in bureaucracy.  It cut to the chase.  And it solved many of the problems of drug affordability and delivery.  They negotiated incredible price deals.  They worked on getting drugs to the people who needed it most, beginning with HIV-positive mothers because 90% of them transmitted HIV to their newborn babies.

The Clinton Foundation is everything American outreach should be.  It should not be shuttered.  We Americans should be shouting about the Clinton Foundation as a beacon of light.  Exactly the way we all want the US to be viewed in the world.  We Americans do good work.  Good Works.

The Clinton Foundation is saving the world.

What is President Bill Clinton’s successor doing?

 

Google Image

Google Image

 

George W Bush sure as hell ain’t saving the world.

 

 

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It Actually IS a GOP Sh*t Storm

We all knew it would be a shit storm when the GOP got together to nominate Donald Trump in Cleveland.  But even I didn’t think it would actually turn into a a convention hall where folks would be running for the bathrooms instead of the exits.

Apparently, though, they are.  Because the GOP doesn’t just have a shitty candidate, they have norovirus:

The virus can be caught through contact from infected people or surfaces, or through consuming contaminated food or water. Norovirus inflames the stomach, the intestines, or both. Symptoms include stomach pain, nausea, diarrhea and vomiting.  (Washington Post)

 

Of course, their candidate has been producing shit from his mouth and making the rest of the world vomit and crap their pants in fear since he announced he was running last year.  And then again each time he speaks.

But with the norovirus taking hold of the delegates, I’m wondering if Mr. Trump needs a new form of transportation to make sure those delegates fill the convention hall to listen to the crazy line up of misogynists, racists and fear mongers.

Don’t you think that they should be riding in this fine vehicle:

Stool bus from father kane

Picture Credit:  Father Kaine’s The Last of the Milleniums.  Where else?  He finds the best things.

Elections matter. 

Register. 

Vote. 

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