Category Archives: Crohn’s Disease

Deja Boo-Hoo

Exactly five and a half years ago tonight, I was in a bit of a snit.  A tiff.  I was, in a word, miffed.

The result of those feelings was this blog.  And in fact, it was the reason* for the stupid name.  And my first post where I wrote:

Because I am fifty-four-and-a-half years old, the world is against me.   The world would be treating me just fine, thank you very much, if I were just six months older.  Read the news lately?  Some folks in Congress want to change Medicare — starting with me.  Starting with folks currently under 55.  Am I the only fifty-four-and-a-half-year-old who is seriously pissed off about this?

Well today, I’m no longer 54-1/2.  But I am not in  a snit.  A tiff.  And I’m no longer miffed.

Today I’m mad as hell.

Did you see that Donald of the small hands plans to put this guy in charge of Health and Human Services?  Congressman Tom Price (R (Suprise!)-GA).

tom-price

Photo Image Credit: Gage Skidmore

Folks are lining up in opposition to Price.  Not only will he piss me off by trying (and god help us, failing) to derail Medicare, but as the Chairman of the House Budget Committee, he is the author of the House bills to repeal Obamacare.  He is adamantly opposed to abortion in all cases.  He opposes including provisions in Medicaid to permit low income women to afford birth control.  He’s probably in favor of hangers.

Here is Democratic Senator Joe Donnelly’s comment opposing Price:

Tom Price has led the charge to privatize Medicare, and for this reason, I cannot support his nomination. I am ready to work with anyone who wants to improve access to quality health care for Hoosier families and seniors, but the nomination of Tom Price would put us on a direct path to end Medicare as we know it, which would raise health care costs and break a fundamental promise to seniors. I have fought to protect Medicare, and I will continue to oppose efforts to privatize Medicare or turn it into a voucher program.

I, personally, will do what I can.  Because I really do fear that before long, this is what Trumpcare will look like:

You know I got this from Father Kane at the Last of the Millenniums, don’t you?

*****

*Shortly after starting the blog with the stupid name, I realized that 54-1/2 was the average age my two late sisters reached.  I kept the name because, as the “sick” member of the family, it reminds me that really, every day is a gift.

I’ll continue to believe that.  Until, of course, I am an old Crohn’s patient whose Medicare has been taken away.  Then I will — literally — poop all over Congress and Donald Trump.

poop-4Google Image

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I’d Like To Buy The World A …

You’ve been asking for more poop from me.  Be careful what you wish for.

Because today is World Toilet Day!

This morning, I was inspired as shit by my friend Judy when she alerted me to the arrival of World Toilet Day (which I’d somehow forgotten?!?) and to Mr. Toilet himself.  And to this article.

Mr. Toilet is my hero.  Seriously.

Mr. Toilet was not born with that name.  Nope, Mr. Toilet is actually a rich, big-hearted man named Jack Sim who wants to do good in the world with the shitload of money he made in construction.  So, being flush with cash, Jack was inspired when he read a statement by his country’s (Singapore) then prime minister:

He said we should measure our graciousness according to the cleanliness of our public toilets.

As a travel lover, let me tell you that nothing, and I do mean nothing, says “welcome” like a clean, accessible toilet.   (As a Crohn’s patient, however, I stay home a lot.)

As I said last year on this auspicious occasion,

The point of World Toilet Day is actually pretty important.  People without access to hygienic facilities risk illness, many women are preyed upon and attacked as they seek out a place to go.  Diseases are transmitted, including infections, cholera, well, here’s a picture.

The "F-diagram" (feces, fingers, flies, fields, fluids, food), showing pathways of fecal-oral disease transmission. The vertical blue lines show barriers: toilets, safe water, hygiene and handwashing. Source WikipediaThe “F-diagram” (feces, fingers, flies, fields, fluids, food), showing pathways of fecal-oral disease transmission. The vertical blue lines show barriers: toilets, safe water, hygiene and handwashing.
Source Wikipedia

Mr. Toilet founded the World Toilet Organization (WTO) in 2001.  As Judy’s article says:

It’s a nonprofit coalition of leaders from more than 40 countries who try to come up with innovative solutions to tackle the world’s sanitation and water problems.

Together these loo lovers started the World Toilet College and SaniShop, initiatives that train entrepreneurs not only to make household toilets but also to maintain them and market them in the developing world. More than 4,000 people have been trained since 2005; the WTO says that up to 10,000 toilets were assembled in 2010 alone.

But it’s the way Mr. Toilet wants to go about increasing toilets that hit me where I live.

So first you have to make owning a toilet not just rational but aspirational. You have to make a toilet come with bragging rights, like a Louis Vuitton handbag.

Aspiration is important, as you can see even rich people have really nice toilets — they go for the highest level all the time. So this is the same as the poor people. They aspire to own products that have bragging rights, like a cellphone or television. The psychology is exactly the same.

He wants to first make owning and using a toilet funny, then sexy, and then normal.  He wants to remove the taboo on poo.  He wants people to laugh about, talk about and sing about toilets.

Here.  I’ll help.

Who knew that World Toilet Day would lead me to find the theme song for my life.

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How to Find A Lost Civilization

It may surprise you to know, but once I dreamed of being an archeologist.  It’s true!  That was before the Indiana Jones movies, too.  It was before I knew I was destined to become a great actress.  Oh, and before bowel disease.

Once I developed bowel disease, my dreams changed.  Tromping around the desert searching for a toilet and artifacts (in that order) didn’t seem like a great career path.  And until today, well, I believed I was right.  But I just realized I was wrong.  (I was right that I would be wandering the desert looking for a place to poop, though.  So I wasn’t completely wrong.)

You see, today’s Washington Post reports that Clifford Coulthard, while looking for a place to go, stumbled onto an absolutely amazing discovery:

“Nature called, and Cliff walked up this creek bed into this gorge and found this amazing spring surrounded by rock art,” archaeologist Giles Hamm told the Australian Broadcasting Corp. “A man getting out of the car to go to the toilet led to the discovery of one of the most important sites in Australian prehistory.”

Profile view of Warratyi Rock Shelter elevated above local stream catchment. (Giles Hamm) as printed in the Washington Post article linked to earlier.

Profile view of Warratyi Rock Shelter elevated above local stream catchment. (Giles Hamm) as printed in the Washington Post article linked to earlier.

as a friend of mine once said, “Civilization all comes down to where you put your poop.”

Think of the discoveries I could have made over the nearly 45 years I’ve been pooping too much!

Shit!

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Filed under ; Don't Make Me Feel Perky Tonigh, All The News You Need, Archeology, Conspicuous consumption, Cool people, Crohn's Disease, Health, Huh?, Humor, laughter, Nobody's gonna excavate my poop. I hope., Oh shit, Poop, Science, Shit, Shit happens

Hey Doc? Is The Joke Always on Me?

I swear, my life is the butt of one joke after another.  And because it’s me, I do mean BUTT.

This morning over breakfast I read the news that researchers have just discovered another likely suspect for my Crohn’s Disease.  Whoo-Hoo!  I couldn’t wait to learn more about my future cure!

azoles

Screen shot of the article in Newswise.

I was in my element.  I am, after all, a fake medical expert AND a real expert patient.  I quickly read the article and learned that researchers had found a fairly common fungus that was likely to be in my gut — a fungus amungus, as my Dad would have said.  Candida tropicalis could be the culprit.  And once you know the culprit ….

Naturally, my next step was to look up candida tropicalis to see what medicines I can take to get rid of it.  But this is my life.  And it is me.

And so I learned that the fungicides that are use to combat candida tropicalis are assholes.

Or really “azoles” — a specific class of anti-fungal drug.

 

thiazole

Wikipedia image of one azole, Thiazol.  Exactly what does it look like is happening here?????!!!!

 

Is it just me or does this seem like another poop joke on me????  After all, an azole by any other name ….

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Nurses — The Beauty of Seamless Teamwork

Naturally, I was just settling down in my recliner for a nap when the commotion started.

Yesterday I had my Remicade infusion in the outpatient infusion center at the hospital.  I was in one of my favorite spots — near the nurses station and the bathroom.  The room is a bay of about 15 vinyl recliners designed for easy cleaning.  Unfortunately, once the leg rests are up, getting out is nearly impossible.  That’s why I like being by both the nurses’ station and the bathroom.  No need for a change of clothes.

Anyway, as I was settling down for my nap with my curtain partially drawn when another patient walked towards me from the other end of the corridor.  As she neared the nurses’ station, she looked up at the ceiling, and I saw her legs buckle, her arms flap out birdlike, and in slow motion she started to faint.

Luckily for Mrs. Smith, a nurse was there to catch her.  That nurse, Brittany, called out for help, and I then witnessed one of the most professional exhibitions of teamwork I’ve ever seen.

Google Image

                          Google Image

Immediately, Molly, my nurse ran to help, calling out, calmly for assistance, and specifying the location.  Brittany and Molly gently lowered Mrs. Smith to the floor, with Molly saying “Mrs. Smith, open your eyes,” repeatedly

Other nurses went different directions towards strategically located equipment which was quickly and efficiently brought to the aid of Mrs. Smith.

Within 1 minute, Mrs. Smith had 6 nurses as well as equipment protecting her privacy surrounding her.  Each nurse had a role.  Molly got Mrs. Smith to open her eyes, then to squeeze her hand, then to speak.  Another nurse contacted the ER to send EMTs with a gurney to get Mrs. Smith to the ER.  Another started her on a fluid IV while still another nurse took an EKG and yet another set up and constantly monitored vital signs, calling them out to the team.

Within 4 minutes, Mrs. Smith, awake and groggy, was wheeled out to the ER with Brittany, the nurse who originally caught her fall, holding her hand and walking with her.

*****

I can honestly say as an expert patient, that being sick sucks.  Often we grouse at our doctors and nurses and other caretakers.  We bitch about the hospitals, the costs, everything.  Because we don’t want to need these services.

But, like Mrs. Smith (not her real name), I’ve been in need of help before.  And when it’s you on the receiving end, it’s hard to appreciate the artistry.

I saw a the most amazing demonstration well-trained staff of caring professionals.  I have a lot of faith in my healthcare professionals, but it was fascinating and wonderful watching when I’m not on the receiving end.

 

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