Category Archives: Chronic Disease

Have You Thanked a Nurse This Week?

As a professional patient, I deal with nurses regularly.  And believe it or not, just yesterday when I was having something embarrassing done to my butt, I remembered to say thank you to the nurses who helped me.  Well, except for the one who was there when I woke up from anesthesia.  I think I said something weird to her, but I don’t think she’ll recognize me with my pants on.

Anyway, it’s National Nurses Week.  Say thanks, now while you’re feeling good.  Because usually when they’re helping you, you don’t feel so good.

And I’m rerunning this post.  Because I can.  And to say thanks, again.

***

Nurses, The Beauty of Seamless Teamwork

Naturally, I was just settling down in my recliner for a nap when the commotion started.

Yesterday I had my Remicade infusion in the outpatient infusion center at the hospital.  I was in one of my favorite spots — near the nurses station and the bathroom.  The room is a bay of about 15 vinyl recliners designed for easy cleaning.  Unfortunately, once the leg rests are up, getting out is nearly impossible.  That’s why I like being by both the nurses’ station and the bathroom.  No need for a change of clothes.

Anyway, as I was settling down for my nap with my curtain partially drawn when another patient walked towards me from the other end of the corridor.  As she neared the nurses’ station, she looked up at the ceiling, and I saw her legs buckle, her arms flap out birdlike, and in slow motion she started to faint.

Luckily for Mrs. Smith, a nurse was there to catch her.  That nurse, Brittany, called out for help, and I then witnessed one of the most professional exhibitions of teamwork I’ve ever seen.

Google Image

Google Image

Immediately, Molly, my nurse ran to help, calling out, calmly for assistance, and specifying the location.  Brittany and Molly gently lowered Mrs. Smith to the floor, with Molly saying “Mrs. Smith, open your eyes,” repeatedly

Other nurses went different directions towards strategically located equipment which was quickly and efficiently brought to the aid of Mrs. Smith.

Within 1 minute, Mrs. Smith had 6 nurses as well as equipment protecting her privacy surrounding her.  Each nurse had a role.  Molly got Mrs. Smith to open her eyes, then to squeeze her hand, then to speak.  Another nurse contacted the ER to send EMTs with a gurney to get Mrs. Smith to the ER.  Another started her on a fluid IV while still another nurse took an EKG and yet another set up and constantly monitored vital signs, calling them out to the team.

Within 4 minutes, Mrs. Smith, awake and groggy, was wheeled out to the ER with Brittany, the nurse who originally caught her fall, holding her hand and walking with her.

*****

I can honestly say as an expert patient, that being sick sucks.  Often we grouse at our doctors and nurses and other caretakers.  We bitch about the hospitals, the costs, everything.  Because we don’t want to need these services.

But, like Mrs. Smith (not her real name), I’ve been in need of help before.  And when it’s you on the receiving end, it’s hard to appreciate the artistry.

I saw a the most amazing demonstration well-trained staff of caring professionals.  I have a lot of faith in my healthcare professionals, but it was fascinating and wonderful watching when I’m not on the receiving end.

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Filed under Advice from an Expert Patient, All The News You Need, Chronic Disease, Class Act, Cool people, Crohn's Disease, GET VACCINATED, Good Deed Doers, Health, Health and Medicine, Humor, Nurses are Wonderful, Thanks again

How I’ll Protest the AHCA

It’s all been said already.  The GOP bill, TrumpDoesn’tCare, sucks.  And frankly, I am unable to find the funny in the fact that the current leaders just sold us down the River Styx, on our way to hell.

I feel it personally, deeply.  I honestly fear for the future of myself and everybody like me with a preexisting condition.  Everybody with a chronic condition that requires expensive medicine.  Mine costs $26K every six weeks.  Over the 5 years of the “pool” the GOP added to the AHCA, I’ll use $1 million just by myself.  Because of poop problems.

Folks keep telling me that I’m over-reacting, that this bill will never pass the Senate.  And that’s true.  But I have no faith that the Senate version will be much better, only different.  After all, it is run by the folks who literally stole a supreme court seat.  Does anybody really believe that these guys will do the right thing?

So clearly there is only one response that I have to Donald Trump and the House GOP.

If you hear about somebody doing this at the White House or on Capitol Hill, just pretend you don’t know me.

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You’ve been waiting for this, haven’t you?


April Fools for normal folks.  A must have product for folks with poo problems.

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Filed under Advice from an Expert Patient, All The News You Need, Assholes, Chronic Disease, Crime and Punishment, Crohn's Disease, Curses!, Disgustology, Farts

Miss Me Yet?

I’m away, without good access to the internet.

But the universe told me you missed me.  Or maybe seeing this picture did:
You’re welcome.

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Filed under All The News You Need, Assholes, Chronic Disease, Conspicuous consumption, Curses!, Farts, Flatulence, FLOTUS

Don’s Johns

Sometimes a metaphor actually plops into your lap.  Or your hands.  Or into someplace you hope you don’t drop your cell phone.

That happened to me today, when I read an article in the Huffington Post about one of the, ahem, priorities, of the folks setting up Friday’s Inauguration of Donald J. Trump.  And really, it is a metaphor for what is to come.

You see, whenever there is a big event here in the DC area, there’s a lot of shit going on.  Literally.  Lots of people = lots of pee and poop!  So port-a-potties line the Mall, surround the Monuments; and ring the Capitol itself.  And in the DC area, one company has the scoop on poop.

dons-johns

Photo Caption  Don’s John’s.com

But, according to the Huffington Post,

Someone’s Covering The ‘Don’s Johns’ Logo On Port-a-Potties For Trump’s Inauguration

When I saw that headline, my first thought was, “Of course they are.  They’re covering up all kinds of shit.”  But this time they’re not covering up the shit, but the name.

dons-johns-2

Photo Credit:  Michael Showalter for the NY Post

Of course folks are covering up Don’s shit.  But it’s up to us to pull off the tape and show the world Don’s Johns.  That will be our job for the duration of Trump’s presidency — whether that is for 2 weeks or 4 years.  To pull off the tape on Don’s Johns.  To expose every breach of law, each unethical behavior, all threats to the rule of law.

THAT is how we will survive Trump.  Because you can’t paper over the truth for long.

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