Category Archives: Health

Hey Doc? What’d Ya Say?

Even an expert patient like me forgets stuff.  Yup, it’s true.  Sorry to disappoint you.

I don’t know about you, but generally, when I go to the doctor, I’m not at my best. Otherwise, I wouldn’t be there.

You see, on bad days things change for me from one minute to the next.  And by “things” I mean my ability to be able to comprehend what I’m reading, what I’m writing ( 😦 ), and especially what I’m hearing.  When I feel awful, I can’t focus on what you’re saying.  And I’m certainly not going to remember it.  I’m not going to write it down, and if I did, I am not going to be able to read what I wrote.  So naturally, I’m not going to do what I just paid half a month’s salary to have a doctor tell me to do.

Most days I am a highly functioning individual.  Smarter than the average bear.  On other days, I’m not.  On those bad days, the bear turns into a sloth and I become a blithering idiot.  Usually diarrhea is involved, and I must say that I often feel like I flush a lot of brain mater.  Luckily, it recycles, but the image is pretty yucky.

Sadly, I’m not the only one.

Sick people as a general rule, sick people are not smart people because they’re sick, feverish, nauseated, dehydrated, cancerous.  People in pain are not smart people.  When you hurt, when you’re weak, when you can no longer lift your head because of the pain, well, it’s hard to listen.

Naturally, that’s when it is most important.

Because that’s when you go to the doctor, when you go to the ER, when you learn what you need to do to feel better.   But you’re sick so you never remember what you’re supposed to do.  Or in what order to do it.  Or for how long to do it.  Or if it goes inside or outside that orifice…

So when I read this article earlier today in the New York Times, I thought — what a great idea!  Record the instructions!

Now why didn’t I think of that?

We all have electronic devices with us at all time.  Use the damn things!  If instructions are recorded,  you can replay the instructions when you forget what you’re supposed to do,  and it’s just like you’re back there in the doctor’s office.  You have a better chance of doing it right.  Just as if you had a personal doctor or nurse right there reminding you just what to do and how to do it.

Some doctors don’t like the idea.  They worry (not unreasonably) about malpractice.  But frankly, compliance with doctor’s instructions is a big problem in patient care.  And this seems to me an excellent recipe for making sure you do what the doctor tells you to do.

Now if I can just figure out how to use the audio on my phone ….

 

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Filed under 2017, ; Don't Make Me Feel Perky Tonigh, Advice from an Expert Patient, Chronic Disease, Curses!, Health, Health and Medicine, Hey Doc?, Huh?

Warning. Do not try this at home. Or anywhere else.

Yes, I realize that it’s been a while since I granted you all the benefits of my fake medical expert advice.  Sorry.

It’s just that poop news has been rather crappy lately.  What’s a specialist to do?

So for this post, I’m going to go out on a ledge.  Write what I don’t know.  Venture into a whole ‘nuther area of specialization.  I feel qualified because this area of specialty is in the same, errrr,  ball park.  Geographically speaking.  Certainly based on adolescent conversation, anyway.

You see, I read an article recently that inspired me to post after a pretty long hiatus

Doctors warn women against putting wasp nests in their vaginas

Now I don’t know about you, but this particular insert isn’t one I’ve personally ever considered.  Maybe I’m just weird.

To be fair to the women who have done this mind-bending medical procedure, the procedure does not involve vaginal insertion of a wasp nest that looks like this one, with buzzing wasps going in and out:

Wasp nest.jpg

Image by ABC Wildlife

On the other hand, maybe something buzzing and going in and out is the whole idea behind the procedure.  But I digress.

Actually, the procedure involves ground up wasp eggs called “galls.”

170601-wasp-nest-vagina

This is a Getty Image, copied from the article

These are Oak leaf “galls” in case you want to make your own.

Galls are wasp larvae, left on the bottoms of oak leaves.  They are ground up and inserted into the vagina to tighten it and to cleanse it.  Okay …

As a fake medical expert, I think I  can safely say that this sounds like a particularly shitty idea.

You know, it never occurred to me that there might be a need to warn women to not put wasp nests, even ground up wasp nests, into their vaginas.

Then again, I never thought it would be necessary to tell women to not vote for a man who believed he could grab their vagina because he was famous, either.

My bad.

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Why No, Thank You

The art of letter writing is dead, and it makes me sad.  Whenever I read history or biography, I think of the loss to mankind and to history of all of the letters we never exchange — emails aren’t the same.  And even still, it is likely that only Hillary Clinton’s emails will be kept.

Greeting cards are few and far between too.  I used to love to spend time searching stores for just the right one with just the right message.  Today, though, good ones are hard to find, and it just never seems that I can get to one of the three stores left in the continental U.S. that sells good ones when I need one.

Thank you cards too.  I once read that the key to George H.W. Bush’s success was that he always sent thank you notes.  But nobody ever sends those any more.

Or so I thought.  But today I go this in the mail:

Thank You Georgetown

A thank you card from the hospital where I let them shove tools up my butt. Inside it thanks me for letting me have them abuse my body.  (Or something like that.)  Not something you hear of every day.

You see, on Wednesday, I had my annual tuneup, a sigmoidoscopy, performed in the hospital so that Dr. C can check out the plumbing.  They aren’t really so bad, and they give me good drugs so I’m asleep and wake up refreshed.  I usually feel quite good afterwards in fact.

This time I felt even better, though.  Because my doctor told me that she thinks I’m in remission!  That means no active disease!  Whoo-hoo.  Even without a poop transplant or drinking worm larvae.  Cool.

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Filed under Advice from an Expert Patient, Assholes, Crohn's Disease, Health, Health and Medicine, Holy Shit, Humor, Oh shit, Poop Power, Poop transplants, WTF?

Have You Thanked a Nurse This Week?

As a professional patient, I deal with nurses regularly.  And believe it or not, just yesterday when I was having something embarrassing done to my butt, I remembered to say thank you to the nurses who helped me.  Well, except for the one who was there when I woke up from anesthesia.  I think I said something weird to her, but I don’t think she’ll recognize me with my pants on.

Anyway, it’s National Nurses Week.  Say thanks, now while you’re feeling good.  Because usually when they’re helping you, you don’t feel so good.

And I’m rerunning this post.  Because I can.  And to say thanks, again.

***

Nurses, The Beauty of Seamless Teamwork

Naturally, I was just settling down in my recliner for a nap when the commotion started.

Yesterday I had my Remicade infusion in the outpatient infusion center at the hospital.  I was in one of my favorite spots — near the nurses station and the bathroom.  The room is a bay of about 15 vinyl recliners designed for easy cleaning.  Unfortunately, once the leg rests are up, getting out is nearly impossible.  That’s why I like being by both the nurses’ station and the bathroom.  No need for a change of clothes.

Anyway, as I was settling down for my nap with my curtain partially drawn when another patient walked towards me from the other end of the corridor.  As she neared the nurses’ station, she looked up at the ceiling, and I saw her legs buckle, her arms flap out birdlike, and in slow motion she started to faint.

Luckily for Mrs. Smith, a nurse was there to catch her.  That nurse, Brittany, called out for help, and I then witnessed one of the most professional exhibitions of teamwork I’ve ever seen.

Google Image

Google Image

Immediately, Molly, my nurse ran to help, calling out, calmly for assistance, and specifying the location.  Brittany and Molly gently lowered Mrs. Smith to the floor, with Molly saying “Mrs. Smith, open your eyes,” repeatedly

Other nurses went different directions towards strategically located equipment which was quickly and efficiently brought to the aid of Mrs. Smith.

Within 1 minute, Mrs. Smith had 6 nurses as well as equipment protecting her privacy surrounding her.  Each nurse had a role.  Molly got Mrs. Smith to open her eyes, then to squeeze her hand, then to speak.  Another nurse contacted the ER to send EMTs with a gurney to get Mrs. Smith to the ER.  Another started her on a fluid IV while still another nurse took an EKG and yet another set up and constantly monitored vital signs, calling them out to the team.

Within 4 minutes, Mrs. Smith, awake and groggy, was wheeled out to the ER with Brittany, the nurse who originally caught her fall, holding her hand and walking with her.

*****

I can honestly say as an expert patient, that being sick sucks.  Often we grouse at our doctors and nurses and other caretakers.  We bitch about the hospitals, the costs, everything.  Because we don’t want to need these services.

But, like Mrs. Smith (not her real name), I’ve been in need of help before.  And when it’s you on the receiving end, it’s hard to appreciate the artistry.

I saw a the most amazing demonstration well-trained staff of caring professionals.  I have a lot of faith in my healthcare professionals, but it was fascinating and wonderful watching when I’m not on the receiving end.

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Filed under Advice from an Expert Patient, All The News You Need, Chronic Disease, Class Act, Cool people, Crohn's Disease, GET VACCINATED, Good Deed Doers, Health, Health and Medicine, Humor, Nurses are Wonderful, Thanks again

How I’ll Protest the AHCA

It’s all been said already.  The GOP bill, TrumpDoesn’tCare, sucks.  And frankly, I am unable to find the funny in the fact that the current leaders just sold us down the River Styx, on our way to hell.

I feel it personally, deeply.  I honestly fear for the future of myself and everybody like me with a preexisting condition.  Everybody with a chronic condition that requires expensive medicine.  Mine costs $26K every six weeks.  Over the 5 years of the “pool” the GOP added to the AHCA, I’ll use $1 million just by myself.  Because of poop problems.

Folks keep telling me that I’m over-reacting, that this bill will never pass the Senate.  And that’s true.  But I have no faith that the Senate version will be much better, only different.  After all, it is run by the folks who literally stole a supreme court seat.  Does anybody really believe that these guys will do the right thing?

So clearly there is only one response that I have to Donald Trump and the House GOP.

If you hear about somebody doing this at the White House or on Capitol Hill, just pretend you don’t know me.

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